Sunday, October 26, 2008

Associations & Support Groups

  • Alzheimer Europe
  • Alzheimer's Association U.S.
  • Alzheimer's Australia
  • Alzheimer Society - Canada
  • Alzheimer's Society U.K.
  • Frontier: Frontotemporal Dementia Research Group - AU
  • Association for Fronto-Temporal Dementias - U.S.
  • Frontotemporal Dementia Care Giver Support – U.S.
  • Pick’s Disease Support Group - U.K.
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    Fact Sheets & Other Information

    Alzheimer Europe Information:

    Alzheimer's Australia Help Sheets:

    Alzheimer's Society U.K Fact Sheets:

    Alzheimer's Association U.S. Information

    Alzforum U.S. Information

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    Relevant Videos from YouTube & Google:

    Note: Sometimes when one of these links are clicked on it will say ‘We’re sorry this video is no longer available’ or that it is temporarily not available. However, I have found that this does not necessarily mean that it will be impossible to access, give it 30 seconds or so, and then try clicking on the link again. If the link continually refuses to work, please email us at admin@dementia-news.com so that we can investigate the problem.

    Early Onset Dementia’s:

    Alzheimer's Arriving Earlier For Some
    (Added to YouTube 12 May 2008)


    Early Onset Alzheimer's: You're Not Alone (Daughter)
    (Added to YouTube 14 October 2008)


    Fronto-temporal Dementia & Pick’s Disease:


    FTD - Diagnostic Overview
    (Added to Google Video 10 November 2005)


    FTD - Treatment
    (Added to Google Video 10 November 2005)


    FTD – Psychological Impact
    (Added to Google Video 10 November 2005)


    FTD – Staging & Long Term Care
    (Added to Google Video 10 November 2005)


    FTD – Legal & Financial Planning
    (Added to Google Video 10 November 2005)


    Pick’s Disease – Daughter’s Story
    (Added to YouTube 19 September 2006)


    FTD: Mayo Clinic Report
    (Added to YouTube 1 October 2008)


    Caregivers of FTD Patients
    (Added to YouTube 17 June 2008)


    Symptoms of FTD often Mislead Caregivers
    (Added to YouTube 17 June 2008)


    FTD: The most common dementia in those under 60
    (Added to YouTube 17 June 2008)


    FTD’s Effect on Behaviour & Language
    (Added to YouTube 17 June 2008)


    Workplace Dynamics Encountered with FTD
    (Added to YouTube 17 June 2008)


    FTD: Potential Therapeutic Targets in Misprocessed Proteins
    (Added to YouTube 17 June 2008)


    FTD Offers Insights Into Emotions
    (Added to YouTube 17 June 2008)


    For more videos about Dementias, go to our Dementia Videos & Movies webpage.
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    Books You May Be Interested In

    Alzheimer's from the Inside Out
    "A captivating read for anyone affected by this mind-robbing disease. Individuals with early-stage Alzheimer's disease will take comfort in the voice of a fellow traveler experiencing similar challenges, frustrations, and triumphs. Family and professional caregivers will be enlightened by Taylor's revealing words, gaining a better understanding of an unfathomable world and how best to care for someone living in it..."
    U.S. Amazon
    U.K. Amazon
    Canadian Amazon
    Fishpond Australia

    Ice Cream in the Cupboard: A True Story of Early Onset Alzheimer's
    "A touching story of a husband's undying love. Pat Moffett offers hope and comfort to patients, caregivers and anyone who must deal with Alzheimer s disease in this agonizing tale, which is a testament to the endurance of the human heart." --The New York Times Book Review
    U.S. Amazon
    U.K. Amazon
    Canadian Amazon
    Fishpond Australia

    Losing Clive to Younger Onset Dementia: One Family's Story
    "Clive Beaumont was diagnosed with Younger Onset Dementia at age 45, when his children were aged just 3 and 4. He had become less and less able to do his job properly and had been made redundant from the Army the year before.Clive's wife, Helen, tells of how she and the rest of the family made it through the next six years until Clive died: the challenge of continually adapting to his progressive deterioration; having to address the legal implications of the illness; applying for benefit payments; finding nursing homes; and juggling her responsibilities as a wife, a mother and an employee..."
    U.S. Amazon
    U.K. Amazon
    Canadian Amazon
    Fishpond Australia

    The Official Patient's Sourcebook on Pick's Disease
    "This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to pick's disease..."
    U.S. Amazon
    U.K Amazon
    Canadian Amazon
    Fishpond Australia

    Fronto-temporal Lobar Degeneration: Fronto-temporal Dementia, Progressive Aphasia, Semantic Dementia
    "This text deals with three forms of dementia in the context of fronto-temporal lobar degeneration. Topics covered within the subject area include the differential diagnosis of fronto-temporal dementia, progressive non-fluent aphasia and theoretical issues of semantic memory."
    U.K. Amazon
    Canadian Amazon

    Pick's Disease - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References
    "This is a 3-in-1 reference book. It gives a complete medical dictionary covering hundreds of terms and expressions relating to Pick's disease. It also gives extensive lists of bibliographic citations. Finally, it provides information to users on how to update their knowledge using various Internet resources. The book is designed for physicians, medical students preparing for Board examinations, medical researchers, and patients who want to become familiar with research dedicated to Pick's disease..."
    U.S. Amazon
    U.K. Amazon
    Canadian Amazon
    Fishpond Australia

    Pick's Disease Medical Guide
    The Pick's Disease Medical Guide is a publication which has been designed to better help readers understand Pick's Disease. This Qontro Medical Guide has been designed with the reader in mind, and is a useful information source for readers at all levels looking to learn more about Pick's Disease. The Pick's Disease Medical Guide is highly recommended for those interested in understanding and learning more about Pick's Disease.
    U.S. Amazon

    Pick's Disease and Pick Complex
    "Pick's Disease and Pick Complex is the first book devoted to Pick's disease and its clinical and pathological manifestations. It sorts through the existing patchwork of terms and entities, and clearly presents the clinical concepts encompassed in this family of syndromes. This volume covers clinical depression, neuropathology, biology, and neurogenetic aspects of the disease. It compares Pick's disease to Alzheimer's, the multiple atrophies, and other neurodegenerative diseases. It also offers a critical review of the pathology and biology involved in other focal atrophies that share certain conditions with Pick's disease..."
    U.S. Amazon
    U.K. Amazon
    Canadian Amazon

    Early-Onset Dementia: A Multidisciplinary Approach
    "Although uncommon in comparison to dementia in the elderly, early-onset dementia presents a huge problem for patients, their carers and physicians. This is the first comprehensive and international book on the subject, encompassing the clinical and neuropsychological features as well as the relevant advances in the neurosciences and patient management. After an introductory chapter on epidemiology, the book deals with assessment and evaluation, covers disorders mimicking dementia and describes the relevant advances in imaging, molecular pathology, neurochemistry and neuropathology. The focus then shifts to the main causes of dementia including Alzheimer's disease, frontotemporal dementia, dementia with Lewy bodies, vascular dementia, Huntington's disease, prion encephalopathies and inflammatory disorders. The final section of the book deals with treatment issues including drug interventions and opportunities for non- pharmacological management..."
    U.S. Amazon
    U.K. Amazon
    Canadian Amazon

    Younger People With Dementia: Planning, Practice and Development
    "(Jessica Kingsley) Univ. of Wales, Bangor. Explores the implications for younger people (anyone under 65 years) with dementia and their families at personal, planning, and service development levels. For practitioners."
    U.S. Amazon
    U.K. Amazon

    Younger People With Dementia: A Multidisciplinary Approach
    "This book is an education resource for practitioners who in organize services for people with dementia, including psychiatrists, neurologists, physicians, nurses, occupational therapists, social workers and even speech and language therapists. Younger dementia patients do not readily fit into any of the conventional mental health services categories, either for adults of working age or for older adults. Currently, old-age psychiatrists generally lead services for this group. Younger dementia patients require specific skills to address their needs, and those skills are best delivered by a multi-professional team working in a multi-disciplinary way. Younger People with Dementia provides all the information to develop this type of dedicated service and will also be relevant for those who commission mental health services."
    U.S. Amazon
    U.K. Amazon
    Canadian Amazon


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